Fibro Guys

A Social Network for Men with Fibromyalgia, Chronic Fatigue or Pain

Hi Everyone,

 

I have a progression of pain with movement and sometimes without movement which started approximately six months ago.  I hurt my neck while exercising and it healed nicely except for a slight problem with movement on the left side--it hurt a little when I moved it a certain way.  But no big deal.  This Feburary I decided to do something about it.  I went to physical therapy and after four treatments my neck got much worse.  It hurt more and started to click and crack with movement.

I had an MRI and it indicated all kinds of disc bulges and the like.  I thought my problem was mechanical.  It seems that the physical therapy unleashed a beast!!

 

I started to get pain down my arms--a dull pain that felt like a toothache.  That seemed to get a little better.  Then I started to get fasculations down my legs and into my feet.  My feet started to hurt when I walk for no real reason.  An MRI of my lumbar spine showed more bulges and the like--even a little stenosis.  I thought that was the problem--so did my doctor and several orthopeadic doctors.

Finally, a neurosurgeon indicated that I did not need surgery.  I was told to see a rhumatologist.

I also saw a neurologist. 

 

I've been diagnosed with fibromyalgia by two doctors-a neurologist and a rhumatologist.  However, one doctor just did the "push, pull" tests of arms and legs and came up with the diagnosis.  He told me to take Cymbala and I will be fine in two weeks. He got annoyed when I gave him a "look" that probably indicated that I thought he was crazy.  The rhumatologist examined me and only fourd two points of tenderness and told me I had fibromylgia.  I asked her how she could make a diagnosis from that alone...again I gave her the "look."  She said sometimes the simple diagnosis is correct.

I told her that sometimes it isn't.  I don't have the respect for doctors that I once had--when I hardly ever visited doctors.

 

Now, I get waves of toothache pain down my legs and into my feet.  I no longer exercise because it seems that any exertion creates a new pain that stays with me.  I work but come home and generally lie in bed.  Weekends are generally spent in bed..which I hate.  I've totally lost my social life.  Everything just gets worse and worse physically.  By blood tests are generally OK.  It just seems to be that my body is failing and screeming out for help.  It seems that my symptoms are so severe that my condition should be easy to identify. 

 

Every doctor I go to does not believe that I need any other tests--each looks at the blood work and they say that everything is within mormal limits.  That's when I go off on them to look further,

Sometimes I wish that I had something that was easily identifiable--and able to be treated--even if it is worse than fibro.  I wish that I would bleed or swell up---just so something can be seen!!!

 

I know I've go on for a long time.  I'm really tired of this.  Sometimes I wish this would kill me physically since it has killed me in just about every other way.

 

I have hope...but not as much as before.

 

Thanks for "listening."

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Hi Joseph. I think most of us here can identify with your experience with doctors. It seems too many of them give rushed examinations, or worse, have preconceived ideas about what's wrong with you before they even examine you...if they even examine you at all! I bounced around from doctor to doctor for nearly 4 years before I found one I was comfortable with, and to be honest, it's seems like it's still a "guessing game" for him. He told me chronic pain and muscle spasm were the "holy grail" of medicine, and doctors have been trying to cure it - with little success - for decades.

Now I'm not a doctor, but are you experiencing any other symptoms? Sleeping problems? Digestive problems? Other joint pain or "swelling" besides your neck? Depression or anxiety (almost a stupid question if you're going something like chronic pain)? Cognitive issues? Balance and coordination? Fibromyalgia usually has lots of coexisting symptoms that compound the muscle pain. That's not to say of course that's not what you have, as it certainly can start with one or two symptoms.

My condition started with neck pain as well. From there it very slowly evolved into the monster it is today. I hope you have better luck than me! If you want to read "my story" it might be helpful. Feel free to PM (private message) me anytime.
Do you have insomnia? Do you experience anxiety? Any other symptoms besides pain?

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